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Archive for the ‘“that just gets on my last fibro nerve”’ Category

1904056_766322236734741_651887722_n“She said she has had enough. She opened her window and yelled out “I’m sick and tired and I will not take any more of the crap you people, who think you are God, want to throw at me!” and then she sat down and calmly cried. Well folks I think she has finally lost it. That is the Minion Breaking News for the day! Have a good day!”

    I am about at my wits end. So, what has pushed me over the edge? Pain of course. What else could do me in so fast? Since my last posting I’ve had all the usual stuff {fibro, psoriatic arthritis, psoriasis, gout, kidney stones,internal shingles and still on O2} and been to the doctor, ER, tests and more tests. I’ve jumped through every hoop I’ve been told to jump through and without a single complaint out of me. I’m dealing with all the extra medical bills that come with it and the super high power bills so far this summer {$400 to $500! normal $120 to $160} even though my SSD check is the same amount year around. The extra bill money must come from cutting back on some meds and food.  Bet you are thinking I’ve lost my train of thought and rambling. Yeah, admit it. You know it’s true and most of the time you would be right, but not today! There is a point to my rambling. It helps to set the stage for my mind blowing, pissed off, anger and frustration. Trying to get my pain meds filled is like getting Congress to pass an act of legislation. Some Pharmacists now think they are God and have become power drunk! It’s bad enough that the new DEA regulations make it extremely hard for people with chronic pain to get relief, but now CVS pharmacists tell me that even though the DEA says there is a 2 day window in which you can fill a prescription {before your last one runs out} that they  can refuse to fill the new one until the day that you run out of the old one! Excuse me but WTF? I asked “…and just how do you go about making that judgment call? Do you know the person? Do you know what is wrong with the person? Do you know anything about that person’s life or home situation?” NO! I was told they just look back to see if the med has been filled within that 2 day window anytime in the last few months or maybe if they think you might be abusing the meds {please let me note here that I have not asked for or been given an increase/change in my pain meds in several years, I use only one doctor to write my prescriptions and have used this one pharmacy for ten years but they are all new pharmacists}. So they know better than the doctor, the person and the DEA. Like I said power drunk.

     So, CVS pharmacists have been making my life hell. You see, I’ve tried getting my pain meds at other pharmacies but they cost twice as much and I really can not afford to pay that right now or for the next few months. Some months do have 31 days and a 30 day supply then runs out 1 day early {they do not account for that either I have asked}. I am home bound and the only place I go is to the doctor or the hospital. I have one son and his fiancé to drop off and pick up my meds which happens twice a month as I have two types and they run out at different times. They both work and go to college full time, so it is hard to find time for them to go when the pharmacy is open. Oh the pharmacy will not let them drop off the prescription on one day and pick it up the next they say it must be done all in the same day since it is a controlled substance. I try to wait until the day the med runs out but have then found that sometimes the store is out of stock and I can’t afford to pay more at some other place. So I have to go without or use more of the other pain med, but then that one runs out early and the pharmacy doesn’t care. Every time there is a problem it means extra trips for my son and that costs him time and gas money that he doesn’t have. So, I catch hell both ways. This leaves me feeling depressed, frustrated and crying in more pain.

     I am so very tired of feeling like I am some type of low life criminal.  The drug addicts and dealers abusing prescription meds are not the ones being hurt or stopped…… it’s us, the people, the human beings with chronic pain that are being hurt…… the very ones who should be helped.

     I am thinking of writing to CVS both local and corporate with a link to this post.  Maybe public views and opinions might help. Maybe it will just be a waste of my time but at least it will be my choice!

     Well, I feel a little better now that I’ve blown off some steam. I guess I’ll ask my little minion to take me by the hand and walk with me for a spell, tell me a few of his jokes and odd humor that I like so much….. and hope you can do the same until our paths cross again……… Lila 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS https://lilabyrdakabirdladybyday.wordpress.com

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Fibromyalgia is one of the most common diseases affecting the muscles, yet its cause is currently unknown.

  It has been a long time since I last posted.  Have been coping with several major flair ups with my fibro and a few deaths in my family and just thinking that I didn’t have anything of value to offer anyone else with fibro.  Maybe I was really afraid. Maybe I still am.  This blog is my place of truth and the truth is that this disease has taken away more than I can say.  Soon, maybe I will be able to share some of the most recent issues that have kept me way…..  when it is a little less painful. This leads me into a nice piece of “that just gets on my last fibro nerve”.   The ads for certain medications “now approved to treat the pain of fibromyalgia”.  Oh joy. Wow, now that will fix me right up! Tell me where do I sign up? Is there a long line, are there chairs and a bathroom close by?  OK I am being sarcastic, but really?  Those ads do rub me the wrong way for several  reasons. 

   First, these medications have been on the market for some time now to treat other illnesses and though they may help some people with the early onset of FMS pain symptoms, they are not the cure all for fibro.  For some the side effects outweigh the usefulness and for others with severe symptoms may not work at all.  I feel that these drug companies are just looking to further profits. 

  Second, the ads then show people going on with their life happy and active as if pain is the only symptom of FMS.  Fibromyalgia is much more then chronic long term pain.   Fatigues, headaches, sleep disorder, Irritable bowel syndrome, memory issues, fibro fog, anxiety, depression, morning stiffness, painful menstrual cramps {for females}, numbness and tingling in hands, arms, feet, legs and urinary symptoms, such as pain or frequency are also symptoms of FMS.

   Third, these ads tell us that once we take their pills we can then become functional, contributing and productive members of society once again.  This third one really pisses me off the most {oh add “pissed off” as a symptom but please note that this is not a mix of IBS and urinary issues} because even though I have FMS I am still functional to a certain level on certain days, I contribute to my family and friends, I am productive within my limits.  I STILL HAVE VALUE! As do all of us with FMS.

  Also, a side effect of this type of ad is everyone that knows someone with FMS wants to tell that person all about the great new medicine that will fix their FMS and if they are told “No thank you.” or “I can’t take that medication.” is promptly told “Oh, you just don’t want to get well.” Or “You just want to take narcotics.”   Over all the years I have had FMS if I was given a dime every time that was said, I would be able to help pay off our national debt …. Scary but true!

  OK, I feel better now.  This is a start. Getting my feet wet again {no not anything to do with IBS, urinary or pissed off …lol…}   moving towards active posting.  So I will continue down my FMS road with my head held high and a little less irritated until our paths cross again…. Lila

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS https://lilabyrdakabirdladybyday.wordpress.com

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