Yes, that’s the real question….. ’cause that’s what this illness does to you…. it changes you…. how you feel, how you think, how you interact with others and even how you look…. it changes how others feel about you, how they think about you, how they interact with you and even how they look at you. Oh, maybe I should introduce you to this illness…. it’s called by several names…. Fibromyalgia, FMS or fibro. And it has a list of symptoms a mile long….that mix and match with out a rhyme or reason…. the only thing that is certain is that you can count on it always keeping you guessing….. and it does. I’ve been diagnosed for about 16 years now….. and no, it doesn’t get better…lol… wow…. this is a blog I’m doing for myself….. if you are here reading this then… OK…. enjoy….. but know it is for me first and foremost…. if you have this or know someone who does and you can take something from here to help…… that’s cool…. I’m OK with that too….. that’s a good thing….. if you want to post…. I’m cool with that too… just respect my space…. I don’t have the energy to mess with trouble makers….. disagreeing with something is OK, just don’t be hateful about it and that’s the last note on that topic….like I said this is for me….a place to enjoy the good days and a place to work through the bad days, the days in between and the hell if I know days too…. there’s sure to be a lot of those days…… also some of my posts may be posted incomplete….. and that’s for a reason….. ’cause that is what this illness does to you… one minute you think you can do it and five minutes later you don’t think you can get out of bed….. my life is a true work in progress…. so where ever I have too stop I will and if I can’t post for a few days…. so be it….I’m writing this in a way of giving myself permission to do this and not feel guilty about it….. ’cause that is one of my things…. I beat myself up if I can’t do what I think others think I should be able to do…. therefore I think I must not fail…. deep… yes…. lol…. sometimes….. then the fog moves in and I’m a real goof….. damn I hope I remember that I started a new blog….hehehehe….. time will tell….. and yes I do have another blog…. Lila’s Room With “Views”….. if you like critters and the environment, go by and check it out some time….. it’s taken off and doing well….. so of course I have to do more….. am I setting myself up to fail? Taking on too much? Hope not….. I want a place I can be me no matter what kind of day it is……. now I hurt and need to rest….. finish this when I can….. so if you are around when the fog clears I’ll say hello!…………. :} Lila
PLEASE NOTE IF YOU ARE READING THIS POST AND YOU ARE NOT ON THE WBE SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN STOLEN AND IS BEING USED WITHOUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS
http://www.lilabyrdakabirdladybyday.wordpress.com
Hi again, Lila! I wanted to share the word in case you were interested in joining the cause and blogging for Invisible Chronic Illness Awareness week! The purpose is to spread the word about invisible illnesses (like fibro!) and how they affect the lives of everyday people.
http://www.bloggersunite.org/event/national-invisible-chronic-illness-awareness-week
Always,
Ƹ̵̡Ӝ̵̨̄Ʒ Ruminari
Thank you Ruminari for the info and site… I’m not sure if I can use the badge on my blog or not… tried to do a blog roll and this theme didn’t let me…lol… not that great on computers…. my other blog can do so much more…. but thought this one just fit right…. any who… back on topic….grin….. I will say as I always do…. “if the Lord be willin’ and my pain don’t rise… I’d like to and give it my best try!”…. right now I’m back to the “got a resp infection going again…”…hope I’ll be back up and posting more by then…. :} … Lila
hello….my wife suffers as you do; w/ no one understanding; w/ ‘try harder…..have you tried….?’etc, etc – esp. fr. family. good nutritional supplements have helped her somewhat….
know that my prayers and heart go out to you…..my one earthly goal is to remain faithful and not bail out on her – 16 years together! – as someone did to me after 17 years…..you are right – no pain like it.
me? great physical health – but near unbearable depression….she supports me 110%.
you are a very good writer. thank you for sharing your heart – you have lifted my pain a little!
God bless you, Lila
mike
Mike thank you for stopping in and reading. I started this blog mainly for myself, but soon found it meant more to me when others read and found something here that helped them in some way…… no matter how big or small the nugget of support or just a good laugh or even a been there and done that. I haven’t been able to write as often as I would like due to the ups and downs of this illness and our bad weather so far this winter, but I do keep a check on things and anytime someone leaves a comment I try and get it approved and a response posted in a timely fashion……lol…..which means as fast as I can. I am glad to have a spouse reading and commenting……keep up the good job you are doing and come by anytime……. the Lord knows this isn’t an easy illness to understand or live with but He still knows we can handle it or else we would not have been given this opportunity to gain the growth we need in order to return to Him one day. I’ll add you and yours to my prayers. Gentle hugs to you and your wife…..they are the kind that don’t hurt us…lol….and let us know we are still human …….. Lila
Hello!
I look forward to following your blog- being another young girl with Fibro. Keep in touch- fibrogurl.wordpress.com or twitter, Fibro_Gurl. I look forward to ‘meeting’ you!
Take care and stay strong.
Thank you for your post! Please come by any time you like…my posts are sort of hit and miss lately….goodness knows there has been a lot going on…but when isn’t there lol…always glad to meet some one else who understands this illness and look forward to seeing your blog also! Lila