Fibro Hell
So very sorry that it has been so long since my last posting. This one will be short. I have been living in fibro hell and I don’t know when I’ll be up to full posting…. there is so, so much I need to say but am too tired to even start and I know once I start it will all come pouring out of me and overwhelm me…. I’ll start to cry and won’t be able to breathe through my nose and that will make using my oxygen hard …not a good thing…don’t need any more dain bramage than I already have…if I start like I siad I’ll not be able to stop. The pain both physical and emotional is just too strong right now. So please forgive me and don’t give up on me as I will come back and do what I know I MUST do….get it all out of me and then move on and maybe what I’ve gone through once recorded might be of help to some one else, as that has to be the reason I am here and going through these trials…there must be a worthy reason for the suffering…it can’t be for nought…. I’ll be on my journy…my walk through hell and back. May you be at peace until our paths cross again…… Lila
PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://lilabyrdakabirdladybyday.wordpress.com
Im so sorry,As a fellow fibromite i understand completely.Dont worry about posting we will still be here when your feeling better.Take care,do as little as possible….sending you gentle hugz:(
Thank you Michelle, things are very stressful right now and the gentle huzs are much needed…that’s some thing all of us fibromites well understand. Lila
My Dear Lila…..I SO understand your pain and the hell your in ;-( SO many people are suffering from these horrific autoimmune illnesses, and I believe it is beyond epidemic.
Is it possible you have Lyme Disease? I too, have Fibro, but I also have Lyme which mimics SO many other diseases like the ones I have. Spinal Stenosis, Degenerative Joint Disease, Dercum’s Disease, CFS, Leaky Gut Syndrom….and the list goes on and on with people all over the world. In the last 2 months I have been thinking of suicide because the pain is so intense I think HOW can I go on?? Of course I WILL go on, but it is tough and PAINFUL 24/7……so I truly do know your pain and agony OF this disease.
It is hard not to have emotional pain with physical pain. It is all so connected, and it truly can drive you to insanity, which is where I’ve been lately. We must just do the best we can and pray for strength. I hope you have some kind of support system….friends, family…..because that is so important for healing. I am pretty much alone in my own private hell, but I will do THE best I can and maybe eventually I will have some support.
Know you are in my thoughts and prayer Lila. Just write when you can to check in.
Did you ever consider Low Dose Naltrexone? The more I read about this in my groups, the more I want to try it as it appears to be miraculous particularly in Fibro and MS….but not so much in Lyme Disease, but it will stimulate your immune system and make it much stronger, which we all need in our illnesses.
Take care and God Bless you!!
With Love~L.P.
Hey good to hear from you again. I’m just feeling near the end of my rope too, but know I will be hanging on as long as I need to. I’m just afraid if I start talking about it all I’ll fall apart and I so can’t fall apart right now. Every one around me that I love and care about are in the middle of live changing events and or imminent death looming over them due to illness or like my younger son being in Afghanistan….I am even having trouble meeting my basic activities of just daily living…. and I just want to be alone…I don’t want to have to depend on anyone else but I can’t even check my own mail or take the trash out…oh crude… I gotta stop….maybe later I can do more but even this much right now is getting me to start crying and then I have a hard time breathing and using my oxygen with a stuffed up nose due to all the tears…lol…see what a mess….but this is my place of truth and I respect my decision too much to compromise this blog by sugar coating my feelings and that would be what I would have to do if I keep trying right now…. but I know I will have to get this out soon before it swallows me up….. take care I’ll be back soon….or so I keep telling myself….. lol… Lila
Just an open reply. I want to thank everyone that has come and read or left words of support. I know I’m not alone when it comes to this or like illnesses. It means so much to me to know I have everyone’s support and my prayers are with those that also suffer….no one else can fully understand except those that have or are living with chronic illness. I’m just down but not out…. I’m coming back and check in on thing too but full posting take concentration and focus that I just can’t find right now…lol…talk about fog…I could cut it with a knife it is so thick…. but I will still follow the light to find my way back…. Lila
There has been a continual rise in use of pain pills all over the world. Pain pills belonging to the drug group hydrocodone is used the most. Drugs falling under the category of hydrocodone are used in pain management. Vicodin Addiction is a kind of disease which is spreading widely across the length and breadth of the world. Vicodin is a drug whose main constituents are hydrocodone and acetaminophen. Hydrocodone itself being a controlled substance when combined with acetaminophen makes the drug very powerful. The Addiction level of vicodin is thus very high and should be taken under care. Doctors prescribe vicodin to reduce pain in body. This drug is most commonly advised after an accident. Slowly after taking several doses vicodin Addiction increases. The doses should be kept at minimum so as to intensify the hard effects.
Agustin Legido
Findrxonline
Let me address this posted comment {as I would normally not have approved negative comments on pain control} by saying those with Fibromyalgia, which is a disease of the autoimmune system {which has a component of chronic non-malignant pain} for which there is no cure, are NOT drug addicts because of the use of pain medication Rx by their doctor and used as prescribed. We are not affected the same way as someone using prescription pain medications recreationally. And unlike those that are prescribed these medication for short term use post-op or after an injury, addiction IS NOT an issue. FMS patients {and other like diseases} deserve to have a life of the highest quality possible in-spite of their pain. Most of us have had to fight for our right to a quality life and OVER COME THE STIGMA OF USING AND NEEDING PAIN CONTROL MEDICATION! We are NOT DRUG ADDICTS. We have enough to deal with and do not need to keep re-fighting what should no longer be an issue. Go fight to keep recreational abuser numbers down and all those who feel we should just deal with pain {which I have been told is a personal weakness not a REAL medical problem} should stay out of our life, stop bothering our doctors and stop trying to tell us how to treat our illness. We do not need any more stress. Many pharmaceutical companies have been recently pushing for us to use their “new and successful” wonder treatment medications for FMS pain and if we would take their medication our pain would be gone and we would be active happy contributing members of society again and even IF their medication does work for some, which is a good thing, there are many, many more for whom their medication doesn’t work or can’t take it for other medical reasons AND it must be remember that PAIN is only ONE part of these illnesses that devastates our lives…..WE do not deserve to be looked at negatively…..sorry for coming down hard on this but I guess it has been building up for a while…..
Hi Lila….just checking in to see HOW your doing, and KNOW you are in my thoughts and prayers, dear heart. I know of your suffering (physically) and of the heartache with your son in Afganistan. I truly believe with ALL my heart that everything happens for a reason. I have anger & sometimes rage over the fact that I have Lyme Disease (with coinfections of Bartonella), and am unable to truly get the proper treatment because of the costs of treating Lyme. This is a devastating disease that has become epidemic. I also believe, along with manu others that Fibro is associated with Lyme Disease. So it very well could be that you may have Lyme Disease and have just been misdiagnosed, as Lyme mimics over 300 diseases, including Fibro and MS. I have been misdiagnosed for years and could never get definitive answers from allopathic doctors WHY I have all this pain….and for SO long with no answers or help. But, I am doing the best I can with what I’ve got today, and only hope that mainstream medicine’s ignorance OF this disease will be reversed with education and knowledge so people, like myself and so many others who are suffering, can get the care they deserve and need.
Please take the best care of yourself that your able, and know I am thinking of you always~With Love Always~L.P.
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PLEASE go to the below likn and read this about Lyme, Bartonella & Babesia, and see IF you have any of these symptoms. Thinking I had Fibro with severe joint and muscle pain and tenderness for decades, I am thankful I saw a LLMD who diagnosed me with Bartonella/Lyme, or I would either be dead…or in agaony and wanting to end my life.
http://lymenaide.wordpress.com/2009/10/07/bartonella/
Hi, thanks. I’m just feeling very weak and run down. Been having some lower intestinal bleeding. I know I need to go back to the doctor but just can’t bring my self to go. Part of what has been going on involves my sister, whom I’ve been estranged from for years….very dysfunctional family and stress was too much and I had to keep many of them out of my life…just diagnosed with cancer of the colon, stomach, throat, liver and stage 4 pancreatic. All of my grandmothers 6 siblings and she died of similar cancers. I’ve had my bouts with some too. My younger son gone…and being in and out of the hospital has just been too much…this is only a small part of my stresses. And now with the death of Osama Bin Laden I worry even more for my son….I got his e-mail and he had been out on a mission and just got back and can’t tell me much except they had been under heavy small arms fire {which means up close and personal combat} and RPG fire. He said he will be back “out side the wire” again soon as he is OK’d by the combat battle stress counselor…which says a lot to me about what he and his unit must have been through….he is only just 20…so young….well I’m about give out…. haven’t slept all night and I got one comment that I approved that I want to address before it rubs me the wrong way…{soft chuckle}…negative pain medicines comments sometimes I can’t ignore it….so before my aching fingers go on strike I must do this and then rest…. you too are in my prayers…. Lila
Gets the day of people with fibromyalgia and we must unite to make them feel popular support. There are millions of people around the world who suffer this disease and they buy vicodin online to control the pain that he suffered on a daily basis, it is necessary that they receive some kind of aid by the high costs that have these prescription drugs.
Jerricho thank you for visiting my blog. I have approved your post on a temp basis as I checked out your twitter account and I am concerned about all the entries about online Rx for pain meds and doing so without a real Rx from a doctor. I understand the issues of chronic long term pain and I know how frustrating it can be to get adequate pain control but doing so illegally isn’t the answer either. As a matter of fact it hurts our cause for proper treatment because the focus then turns to the illegal use and not the need for help! It promotes the use by recreational users and addicts. I truly hope you get help but please don’t give all of us with fibro and like illnesses a black eye by the illegal purchase of Rx meds.
It is good to know that oxycodone and heroin cause in our body. That they use it much to control chronic pain and overcome diseases like Fibromyalgia, back pain, among others. Findrxonline on his blog suggests that Due to the addictive nature of both these drugs, these are frequently used by the recreational drug users. These drugs are more used as addictive drugs then pain relievers. Both these drugs are derivatives of codeine. Both these drugs, invariably as usual, are capitalized as most of their genres, either by smoking, sniffing or injecting into veins. Both oxycodone and heroin habit forming properties and may have caused some physical and psychological disorder, if taken for a long time or abused. Both these drugs are opiates and have similar chemical structure. Even, the side effects and overdose symptoms caused by these medicines are similar. The side effects caused by these medicines are drowsiness, confusion, euphoria, hallucination, hypotension, nausea, anxiety, constipation, vomiting, increased difficulty in urination etc. And the various symptoms associated with these drugs overdose are weakness, cold and clammy skin, pinpoint pupils, slow heart rate, respiratory depression, extreme sedation, eat etc. The withdrawal effects like insomnia, depression, anxiety, sweating, undulant, muscle weakness and pain, fever and other flu like symptoms; are also common in both these drugs.
“It is good to know that oxycodone and heroin cause in our body.”
It is always good to know how ones body works and reacts to medical treatment and should be explored by the individual and their doctor. Heroin is illegal and is never an option. I will never allow the comparison of an illegal substance to the use of legal medical treatment to go unchallenged, as the recreational use doesn’t compare to the use for a person who has a medical illness that causes severe chronic nonmalignant pain as the body responds differently. Nor do I think it should be a first choice of treatment for a new onset of fibro. There are new medications now that have been effective in treating new onset of fibro{for the pain symptom} as long as there are no other disease processes present that would cause an adverse reaction to the medications. These new medications or older ones newly used to treat fibro have NOT been shown to help for those that have had the illness for many years untreated or under treated and can cause more harm than good. I have had fibro for several years before being diagnosed and then under treated for several more just as many others have. I for one refuse to continue to be a lab rat for pharmaceutical companies that are really only in it to making money and not really care about the person. They also tend to forget that pain is only ONE symptom of fibro and these other symptoms are NOT the cause of taking pain medication. Addiction for the long term treatment isn’t even an issue as taking this kind of medicine isn’t going to be discontinued. Short term use SHOULD be closely monitored and used sparingly so if the medication is used properly addiction and or recreational use wouldn’t be a problem. Too many of the choices of medications used to treat long term pain have been pulled off the market for one reason or the other {like darvocet…cheap and effective very old medication} and leave only newer more aggressive and expensive medications…..hmm….. smells like greed on the pharmaceutical companies part to me. Know your choices, work with your doctor, use legal medication as prescribed and keep big brother out of our medical plan of treatment. NEVER avoid treatment because others say you are weak and you should be able to overcome your fibro with your mind and positive thinking ONLY. AS YOU WILL NEED BOTH and some nonjudgmental support can come in handy too.
I have only a couple of words in regard to Fibromyalgia.
Lyme Disease with coinfections.
I would bet my LIFE on it….that THIS is what you have, but any ordinary mainstream medical doctor will tell you otherewise and prescribe many pain meds at your expense….and at his wealth….and Big Pharma’s.
I would ask you kindly to check into Lyme Disease as there is a major connection to Lyme/Coinfections and Fibro.
Take Care~L.P.
Shocking case, I really liked the story and I’ve added the blog in my bookmars to have it frequently, I suffer from Fibromyalgia and I know what is battling pain and live with prescription medications.
Hydrocodoneforever
controlledsiubstances.net
People who suffer from auto-immune disorders (rheumatoid arthritis, thyroiditis, etc.) often have fibromyalgia as an additional burden. Fatigue is actually one of the criteria for diagnosing fibromyalgia, at least with doctors in my acquaintance. Fatigue at this time of year can be influenced by diminished sunlight, changes in barometric pressure, and certainly by the stress that ironically comes from the fatigue to begin with. It’s a vicious cycle. Many women I’ve known with fibromyalgia are helped by exercise–but this is a totally individual decision. Almost all the women I know with the condition are helped by sunlight and some fresh fruit and vegetables. Have you considered investing in a juicer–either a citrus or vegetable? Juicing can be a costly therapy, but if you buy juiceable produce, you *may* find a great deal of relief. The greatest source of relief I’ve found for the unbearable muscle pain is citrus fruit, and if you can afford to juice, say, a bag of sale oranges, the relief may surprise you. Good luck and God Bless.
Pharmaspider.com
You have a really good, positive attitude concerning the outcome of your mother’s stinging criticisms and name-calling. Ideally that kind of thing would never happen, but life throws all kinds of things our way. How great that you can use this as an opportunity to learn kindness toward others and as an impetus to learn kindness toward yourself. Thank you for sharing!
Findyourdrug Websearch
Thank you for coming to my blog and sharing. It is always good to know there are others who understand. I am happy for you and hope you continue to be so! Please feel free to come by and lurk or post.
Lila
**My allowing the above post in no way means that I either agree nor disagree with the subject matter. All need to work with their doctor and decide on a plan of care and research all options. Thank you for your post.
Lila
Hey there any and every one just a short note. I will be back up and running soon. Once my youngest one comes home from deployment I’ll be OK to be back. Just a few more days. But right now in a major flare up with my fibro and now my right knee is swollen up with psoriatic arthritis and back on crutches and taken another tumble too. But things must be going OK as I see they have the snow falling across the blogs and since my last post was about fibro hell….. yeah I’m going there just can’t resist the temptation…. it’s snowing in my fibro hell!! Just look at the photo …yep snowing… I will be back hope before Christmas!
I wanted to let you know about my charity event for National Fibromyalgia Day May 12,2012. Just make a purchase at http://www.glitzeeglee.com and 50% of all proceeds will go to fibrocoalition.org. I’ve had fibromyalgia for 7 years. I highly recommend you visit this charity’s website. They have helped a lot of people find the root cause of their fibromyalgia. They publish a magazine with great tips and the latest research.
Here is a website that gives you great tips for good health, take a look at it, I’m sure you will find it interesting.
nutrition related to fibromyalgia and other autoimmune diseases