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My inner fibro kitty speaks out.

My inner fibro kitty speaks out.

     Yes, yet another trip to the doctor and a whole fist of new prescriptions to try to sort through….. you know…. will my health insurance cover it and how much will it cost….. can I afford the co-pay…. can I buy it now or must I wait to work it into next month’s budget or is it a must, must find a way to get it now…. like new antibiotic to treat yet another infection….. see why my inner fibro kitty is having problems….. oh yeah start back on anti-anxiety medication….. darn where did that kitty go? She took the prescriptions and ran off….she can’t make it very far…. it’s raining and she can’t move any faster than I can….. so it will be a very slow chase… unless I lose her in the fog…. oh well guess I’ll be looking for her until our paths cross again……. Lila  ;} 

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESShttp://lilabyrdakabirdladybyday.wordpress.com 

Its a learning thing.

"The Brick Wall"

         “The Brick Wall”

     MONDAY:  Get up out of bed.  Walk over to the Brick Wall.  Hit said Brick Wall.  Look at hand.  Bloody and bruised .

     TUESDAY: Get up out of bed.  Walk over to the Brick Wall.  Hit said Brick Wall.  Look at hand.  Bloody and bruised.

     WEDNESDAY: Get up out of bed. Limp over to the Brick Wall.  Hit said Brick Wall.  Look at hand.  Bloody and bruised.

     THURSDAY:  Slide out of bed.  Limp over to the Brick Wall.  Hit said Brick wall.  Look at hand.  Bloody and bruised.

     FRIDAY: Roll out of bed.  Drag self over to the Brick Wall.  Hit said Brick Wall.  Look at hand.  Bloody and bruised.

     SATURDAY: Fall out of bed.  Crawl over to Brick Wall.  LOOK at said Brick Wall.  NO change.  Look at hand.  Still bloody and bruised.  DON’T hit said Brick Wall.

     SUNDAY:  Sit on bedside.  LOOK at Brick Wall.  NO change.  Look at hand. Not bloody and healing bruise.  DON’T hit said Brick Wall.  WOW, I have made progress!  I can’t change having fibro but I can change how I deal with fibro.  If it hurts STOP trying to do what ever it is…… find a way around the Brick Wall…..

Oh hell, now someone from my peanut gallery says something stupid like “So, you’re not even going to try anymore?”

     What I have learned?    If I want things to change I have to remember I can only change myself…… oh and that it is against the law to kill someone in your peanut gallery……

     Hope you can find a way around your Brick Wall and have a pleasant stroll in the sunshine until our paths cross again…. Lila

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESShttp://lilabyrdakabirdladybyday.wordpress.com 

 

Wrestling_Match_Kittens jobspapa.com

 

                      Eeeeeenough! OK? How can I form a truce with this fibro and psoriatic arthritis? Anyone know? Please one and piss the other off or so it seems.  At present, I think there is only one spot on the back of my left knee that doesn’t hurt.  My right hand, wrist and arm feel like hot coals are in all the joints and have limited range of motion, especially the wrist area. { The freaky weather changes are just about to drive me and my pain nuts!}  Now, let’s throw in an other UTI just for good measure. Oh, and don’t let me forget I had to have a cardiac  ultra sound done and by the time the technician was finished, I was bleeding under my left breast. I think that technician did mammograms in a past life.   I still need one of those too.  Come to think of it, the last time I talked with the doc he said I should have a colonoscopy in addition to all the other tests.  Wish there was some way to just drop my body off for all this maintenance work and repairs but my mind could be dropped into a loaner body, so I could go on a nice vacation until my body’s work was complete.  I do see a flaw in that plan now that I think about it…. yeah staying in the loaner body and running away and not coming back might be just too much of a temptation….lol… but that would be nice….. hmmm oooohhh  just think if we could all have a week each year in a loaner body to use as a vacation from fibro!  See, I’m not being greedy.  Just one week.  OK, now I’m sure of it, my brain has been effected…. probably from chronic fibro fog.

     I am now starting to get some mild relief from my pain meds but not nearly as well as a few months ago.  It really does feel like my level of chronic pain has increased and not solely from fibro.  I’ve not had to adjust my pain meds in a few years.  One more thing to add to my list of topics to talk to the doc about.  Yeah, I have to keep a list or I will forget everything the moment the doc walks through the door.  Anyway, maybe now I can find a comfortable position and get some rest.  I hope and wish all the rest of you out there can find your comfortable spot and get some rest too until our paths cross again…. Lila

 

Photo by: www.jobspapa.com

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESShttp://lilabyrdakabirdladybyday.wordpress.com 

 

 

 

 

 

 

92596e0bd673cdce4fc863de6f29f40a rock city tn

     Really?  Now “They” give that nice little bit of information?  Not what I signed up for. I’m turning around and going back…..AND I want a refund!  Wow it has been a long time since I last posted.  I keep telling my self I will do better and post at least once a week. Then something else happens and knocks me for a loop.  All the stress just makes my fibro worse. I am currently fighting bronchitis too.  I   would like to put Christmas on hold but for some reason old Saint Nick isn’t returning my calls.  With all the deaths this year, I just don’t feel like singing x-mas songs and putting up a Christmas tree.  I really do miss my aunt who died a few months ago. My sister passed this past year and now my brother a couple of weeks ago.  I am now an only child.  Well then let me say that my older son has stopped speaking to me and he will not say why. Wants me to figure it out…. may have to do with FMS which I heard him say “FMS” isn’t a real illness.  Just a reason to check out and not be a good mother.  Seems to have forgotten when I worked two jobs at times to make ends meet and without help of child support.  Most of what I missed out on was school stuff for him but that was due to working {at the start} and not FMS.  Later once I could no longer work due to FMS, I was able to do a few more school things with my younger son but not many and only after some of our more stressful issues {i.e. unable to work so little money from me}  were resolved. Less stress = Less FMS.  I have always been proud of him and he is doing well for himself. Still am proud of him and love him so much. Both of my sons for that matter.  I hope he will come and talk to me. I told him my door is always open.  I would go to him but pretty much home bound now a days and he said not to try to come over to his home.  Just one more thing FMS has cost me.  I don’t understand how people can say firbromites are just faking FMS.  WHO WOULD WANT THIS KIND OF PAIN?  This kind of life?  To miss out on so much of the lives of the ones we love? Then to be blamed for missing out and messing everything up for everyone else.  Anyway, wish Mrs. Saint Nick would get the old man to call me back.  If he don’t call me before the 25th I’m going to post a sign next to my chimney….”Enter at your own risk”… yep I’ve set a few traps…. hope one and all are having a better time than me…. have a sip or two of Christmas cheer until our paths cross again…. Lila

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://lilabyrdakabirdladybyday.wordpress.com 

The Gout Fairy

  I have found that even on one of my worst days I can still give to those around me. Such as, days like today. I can assist others around me by giving encouragement on setting and achieving at least one important goal for the day. For example, telling them what they can go do with themselves or even on how to make it a group activity. And with much enthusiasm too!

     Yes folks, that blessed Gout Fairy has come a calling again. It seems that she snuck up on my old friend the Travel Gnome {who is supposed to keep her busy and away from my place} while he slept and locked him in the closet. Yep, she came in and wacked both my feet and knees with her gout wand. Then she even had the nerve to say “Morning Sunshine! And a happy early Mother’s Day to you too!” 

     Well she may be able to make me hurt more on top of my usual FMS stuff but now I am a little more prepared for her. Thank goodness for my new power chair. Having this chair has made a positive change in the quality of my life. Now, I can get  around better even on my worst days and not falling down is truly a blessing since the floor just keeps getting harder.

Zchair                                                                         My Chair!

    

   So there, take that Gout Fairy and you go and do one of those group activities with great enthusiasm! 

May one and all have blessed, warm, soft and fuzzy days until our paths cross again…..Lila

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://lilabyrdakabirdladybyday.wordpress.com

 

 

It’s Not JUST Pain.

Fibromyalgia is one of the most common diseases affecting the muscles, yet its cause is currently unknown.

  It has been a long time since I last posted.  Have been coping with several major flair ups with my fibro and a few deaths in my family and just thinking that I didn’t have anything of value to offer anyone else with fibro.  Maybe I was really afraid. Maybe I still am.  This blog is my place of truth and the truth is that this disease has taken away more than I can say.  Soon, maybe I will be able to share some of the most recent issues that have kept me way…..  when it is a little less painful. This leads me into a nice piece of “that just gets on my last fibro nerve”.   The ads for certain medications “now approved to treat the pain of fibromyalgia”.  Oh joy. Wow, now that will fix me right up! Tell me where do I sign up? Is there a long line, are there chairs and a bathroom close by?  OK I am being sarcastic, but really?  Those ads do rub me the wrong way for several  reasons. 

   First, these medications have been on the market for some time now to treat other illnesses and though they may help some people with the early onset of FMS pain symptoms, they are not the cure all for fibro.  For some the side effects outweigh the usefulness and for others with severe symptoms may not work at all.  I feel that these drug companies are just looking to further profits. 

  Second, the ads then show people going on with their life happy and active as if pain is the only symptom of FMS.  Fibromyalgia is much more then chronic long term pain.   Fatigues, headaches, sleep disorder, Irritable bowel syndrome, memory issues, fibro fog, anxiety, depression, morning stiffness, painful menstrual cramps {for females}, numbness and tingling in hands, arms, feet, legs and urinary symptoms, such as pain or frequency are also symptoms of FMS.

   Third, these ads tell us that once we take their pills we can then become functional, contributing and productive members of society once again.  This third one really pisses me off the most {oh add “pissed off” as a symptom but please note that this is not a mix of IBS and urinary issues} because even though I have FMS I am still functional to a certain level on certain days, I contribute to my family and friends, I am productive within my limits.  I STILL HAVE VALUE! As do all of us with FMS.

  Also, a side effect of this type of ad is everyone that knows someone with FMS wants to tell that person all about the great new medicine that will fix their FMS and if they are told “No thank you.” or “I can’t take that medication.” is promptly told “Oh, you just don’t want to get well.” Or “You just want to take narcotics.”   Over all the years I have had FMS if I was given a dime every time that was said, I would be able to help pay off our national debt …. Scary but true!

  OK, I feel better now.  This is a start. Getting my feet wet again {no not anything to do with IBS, urinary or pissed off …lol…}   moving towards active posting.  So I will continue down my FMS road with my head held high and a little less irritated until our paths cross again…. Lila

 

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://lilabyrdakabirdladybyday.wordpress.com

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Fibro Hell…..

Fibro Hell

So very sorry that it has been so long since my last posting.  This one will be short.  I have been living in fibro hell and I don’t know when I’ll be up to full posting…. there is so, so much I need to say but am too tired to even start and I know once I start it will all come pouring out of me and overwhelm me…. I’ll start to cry and won’t be able to breathe through my nose and that will make using my oxygen hard …not a good thing…don’t need any more dain bramage than I already have…if I start like I siad I’ll not be able to stop. The pain both physical and emotional is just too strong right now. So please forgive me and don’t give up on me as I will come back and do what I know I MUST do….get it all out of me and then move on and maybe what I’ve gone through once recorded might be of help to some one else, as that has to be the reason I am here and going through these trials…there must be a worthy reason for the suffering…it can’t be for nought…. I’ll be on my journy…my walk through hell and back.  May you be at peace until our paths cross again…… Lila

PLEASE NOTE IF YOU ARE READING THIS AND YOU ARE NOT ON THE WEB SITE “LILA LOST IN THE FIBRO FOG…” THEN WHAT YOU ARE READING HAS BEEN  STOLEN AND IS BEING USED WITH OUT MY AUTHORITY AND I HOPE YOU WILL COME TO MY WEB SITE BLOG AT WORDPRESS http://lilabyrdakabirdladybyday.wordpress.com 

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